Support Groups

Telephone dialling codes for the different regions in South Africa

Johannesburg – (011)
Cape Town – (021)
Durban – (031)
Port Elizabeth – (041)
Bloemfontein – (051)

Abortion

  • Amato Pregnancy Counselling Centre – (012) 342-3452 / after hours 084 740 5418 – Free and confidential pregnancy counselling, pre and post abortion counselling, miscarriages and still births counselling – 787 Arcadia Street, Arcadia, Pretoria / heila@amato.co.za / www.amato.co.za
  • Life Link Pregnancy Crisis Centre – Alternative to Abortion, HIV testing and counselling – (011) 394-8560am / 083 562 6106 – Sharon

Adoption

  • Adoption SA – (012) 312-7608
  • ACVV Adoption Tracing Service – (021) 511-1393 – Linda van Zyl
  • Birthline – (021) 761-4747 – support group for people affected by adoption
  • Catholic Women’s League Adoption Society – (011) 618-1533
  • Choices Crisis Pregnancy Counselling Centre – (021) 852-6454 / info@choices.org.za – 1 Schapenberg Road, Somerset West
  • Department of Social Development – (021) 483-5045
  • Free State Care & Action – (051) 447-1838
  • Johannesburg Child Welfare – (011) 298-8500
  • Life Link Pregnancy Crisis Centre – Sharon – (011) 394-8560am / 083 562 6106
  • Pretoria Adoption Support Group (PASG) – pretoriaasg@yahoo.com This group offers support to individuals and couples considering adoption (transracial families, single parents, gay parents or any other family) as well as those who have already adopted their precious children. Meetings are held on the first Sunday of every month in order for adoptive families to socialise, share experiences and to offer hope and encouragement to newcomers.
  • Princess Alice Adoption Home – (011) 646-5641 referrals by JHB welfare

Aids

  • Aids Helpline – 0800 012 322 – open 24 hours
  • Aids National Crisis Line – 0861 322 322
  • Aids training, information & counselling centres – (011) 728-1347 / (012) 342-2222 / (013) 755-3606 / (014) 594-1455 / (016) 428-1640 / (018) 381-4263 / (021) 461-1111 / (033) 394-4444 / (041) 373-8666 / (057) 352-2212
  • New Start Counselling and Testing Centres – (051) 430-9595

Air Ambulance and Helicopter Service

  • MRI Criticare – 0 800 111 990
  • Netcare Emergency Services – 082 911

Albinism

  • Albinism Society – Nomasonto Maziduko – (011) 838-6529
    www.albinism.org.za

Alcohol Related Research

  • Foundation for Alcohol Related Research (FARR) – (021) 686-2646
  • Leana Olivier – CEO – 083 275 0202 / info@farrsa.org.za / www.farrsa.org.za
  • National Health Laboratory Services (Wits) – Genetic counselling – (011) 489-9223

Allergy

For more information on allergies, log on to www.allergysa.org / (021) 447-9019 / mail@allergysa.org

Ambulances – Private

  • ER 24 Western Cape Control Room – Toll Free 0800 22 55 99 – Emergency line
  • ER 24 National Control Room – 084 124
  • Netcare 911 – 082 911

Arthritis

  • Arthritis Foundation – (021) 425-4738
  • Arthritis Foundation Help Line – 0861 30 30 30

Asthma

  • National Asthma Education Programme (NAEP) – a non-profit organisation that disseminates impartial information about asthma. Membership for the public is free – (021) 830-5937 / 086 535 7156 / www.asthma.co.za / naep@netactive.co.za

Attention Deficit Hyperactivity Disorder

  • Attention Deficit & Hyperactivity Support Group of Southern Africa – (011) 888-7655 / info@adasa.co.za /www.adhasa.co.za
  • Hyperactivity Disorder Support Group – Erica – (021) 790-4178 / kstander@intecom.co.za
  • Marietjie Stander (Principal) – (021) 919-9585 – School / (021) 919-9669 fax
  • Proed Centre – (021) 686-1567/8/9 – Specialists in learning difficulties and attention deficit disorders. Assessment and therapy centre and primary school – www.proedhouse.co.za / admin@proedhouse.co.za

Audiologists

  • SA Association of Audiologists – 082 727 5977

Autism

  • Autism South Africa – (011) 484-9909 / 9923 / (011) 484-3171 fax / info@autismsouthafrica.org / www.autismsouthafrica.org
  • Autism Western Cape – (021) 685-9581 / www.autismwesterncape.org.za
  • The key school for children aged 2 to 12 with autism and developmental delay – (011) 726-2445

Baby Blues

Postnatal Depression Support Association – 082 882 0072 / www.pndsa.org.za
Postnatal Depression National Helpline – 082 882 0072
New Arrival Survival – Stephanie Urdang – 082 575 4587
Salome Strous – (011) 802-2667 / 082 463 5162

Barth Syndrome Foundation

Jeanette Thorpe – 082 465 1965 / postmaster@barthsyndrome.org

Batten’s Disease Support Group

Mr & Mrs van Zyl – (016) 976-5294 / 084 728 6990 – Marius / 076 068 8316 – Wilna

Behavioural Disorders

Division for Child and Adolescence Psychiatry – Rondebosch – (021) 685-4103
Tygerberg Hospital – (021) 938-4573 – patients under the age of 18 years will be assessed after referral from a doctor or primary health care clinic
Meyrick Bennett Child Centre – (031) 201-4126 – Behavioural and developmental disorders
Pro-Ed Assessment and Therapy Centre – (021) 686-1567/8/9 – Specialists in learning difficulties and attention deficit disorders / www.proedhouse.co.za / admin@proedhouse.co.za

Bereavement

Compassionate Friends – Assists bereaved parents, siblings and grandparents after the ¬death of a child to cope with their grief experience – Monday – Friday 9am to 1pm – one-on-one counselling available / (011) 440-6322 / (021) 856-0717 – Alta / (031) 266-5847 – Mogie / (043) 721-0406 – Myrtle / Bloemfontein – 082 455 7433 – Aubrey
Nechama – (021) 462-5520 / admin@nechama.org.za – provides emotional support and counselling for persons of the Jewish faith who have suffered a bereavement or loss. Emergency only – 079 888 9347
Pauline Sevitz – social worker and counsellor in private practice – adjustment to new parenthood and its effects on the couple’s relationship, individual therapy and couple counselling, stillbirths and miscarriages, illness and bereavement, postnatal depression, marital & relationship and family therapy, impact on couple’s relationship following bereavement, lectures, workshops and training – (021) 794-6628 / 082 570 7165
Perinatal Loss Group – Trish – 081 528 6577

• Bilibed Hire (treatment for jaundice at home – no eye covering needed)

Gauteng

• Bedfordview – Bedfordview Mother & Baby Clinic – 083 375 6938
• Boksburg – Christine Swanepoel – 082 487 4533
• Craighall Park – Adrienne Utian – 084 588 6677
• Greater Johannesburg and Lenasia – Dee Medina – 082 850 4455
• Illovo – Adrienne Picker – 083 266 8112
• Johannesburg greater – Dee Medina – 082 850 4455
• Kempton Park – Santie Schwiebus – 082 408 5696
• Lenasia – Dee Medina – 082 850 4455
• Morningside – Dot Morris – 082 558 7703
• Pretoria – Santie Schwiebus – 082 408 5696
• Saxonwold – Jane Pitt – 082 494 7027
• Springs – Hettie Grove – 083 492 5861
• Springs – Hettie Koch – 083 390 1459
• Strydompark – Breast pumps and Beyond – 083 300 4302
• Vanderbijlpark – Marietjie Roos – 082 255 7818

Eastern Cape

Port Elizabeth – Michelle van der Westhuizen – 082 940 4200

Free State

Bloemfontein – Anke du Plessis – 083 220 1098

Mpumalanga

Ermelo – Yulanda Fourie – 082 572 7136

Blindness and Vision Impairment

• Blind SA – Cathy Donaldson – 083 701 4246 / president@blindsa.org.za
• Association for visually impaired children and their parents
• Athlone School for the Blind – (021) 951-2234/9 / info@asstb.org.za
• SA National Council for the Blind – (012) 452-3811
• South African Guide Dog Association Head Office – (011) 705-3512
• South African Guide Dog Association – (021) 674-7395 / info@guidedog.org.za / www.guidedog.org.za
• Cape Town Society for the Blind – (021) 448-4302
• Institute for the Blind – (023) 347-2745 / www.kaleidoscope.sa.org
• KwaZulu Natal Society for the Blind – (031) 202-7277
• Pioneer School – (023) 342-2313 – early interventive programs, education and training from pre-primary to grade 12. Serves blind, partially sighted, deafblind and multi-handicapped learners

Provincial Council

• KwaZulu Natal – (031) 309-4991 – Blind & Deaf Society
• Free State – Blind Society – (051) 448-1384
• Mpumalanga – (013) 752-3559 – SA National Counil for the Blind
• Limpopo – (015) 291-3685 – SA National Council for the Blind
• Tape Aids for the Blind – (031) 309-4800
• Branches – (011) 786-6130 / (012) 362-5414 / (021) 689-5983 / (031) 309-4800 / (033) 330-4519 / (043) 722-7615
• The League of Friends of the Blind – (021) 705-3753 – rehabilitation centre for blind and partially sighted children and adults. Independence development services for blind and visually impaired children and adults, early childhood development for blind children from birth to 6 years www.lofob.org.za / info@lofob.org.za
• Tygerberg Association for the Blind – (021) 939-6999 / 072 697 7885 – Roy / 62 Bedford Street, Parow / roy.abbott@telkomsa.net

Bone Marrow for Africa

The Sun Flower Fund – 0800 12 10 82 – call centre
• Head Office / (021) 701-0661 / www.sunflowerfund.org.za / donors@sunflowerfund.org.za

Breastfeeding

Breastfeeding Association – (021) 686-8363
Breastfeeding Association of SA – Yulanda Ridge – (033) 396-1733 / 082 725 5043 / www.healthandbabies.com

Breastfeeding Support Group

• Howick & Pietermaritzburg – Pamela Willment – 079 067 1250
• Upper Howick – Sandy – 072 269 7547
• Heather Pieterse – (012) 329 -3865

Breastfeeding 24 Hour Helpline

• Panorama Breastfeeding Clinic – 083 703 7711

La Leche League

• www.llli.org/SouthAfrica.html
• www.alecheleague.org
• La Leche League South Africa is a voluntary organisation which provides information and support to women who want to breastfeed their babies. La Leche League Leaders are experienced breastfeeding mothers, trained and accredited by LLL, who are happy to help other mothers with questions and concerns about breastfeeding. This one-to-one approach is one of the most effective (and friendly!) way of getting the support you need. It is important to notice that all our Leaders are mothers who volunteer their time and are therefore not always available.

Gauteng

• Edenvale – Marguerite (011) 453-7188
• Benoni – Cecilia (011) 918-7924 / Joan (011) 849-8250 / Annatjie (011) 973-1900 / Mara 083 754 1045 / Lesley (011) 849-9214 / Lisa 083 286 0009 / Pauline 083 659 4986
• Pretoria – Jessica (012) 332-2564 / Tobie (012) 430-3334
• Centurion – Leonie (012) 654-6961 / Nicole (012) 345-4898 /Petro (083) 656-1604
• Randburg – Ellen (083) 785-2524 / Sharon (011) 795-4209
• Sandton – Ute (082) 652-6436 / Tanya (083) 408-0785
• Krugersdorp – Karla (083) 757-7365
• Springs – Bernadette (082) 674-4762
• KwaZulu Natal
• Durban – Jane (031) 309-1801
• Amamzimtoti – Claudia (031) 903-4908
• Munster – Ruth (039) 319-2054

Western Cape

• Blouberg – Elaine (021) 976-8537 / Juliet (021) 556-0693
• Bonnievale – Sonja (023) 616-3192 / 072 259 3521
• Brackenfell – Vania 073 165 9678
• Durbanville – Trudy (021) 976-2598 / Tiffany (021) 913-3586
• Helderberg – Leana (021) 855-4657/083 415 4657
• Parklands – Simela 076 214 8075 / Elaine (021) 976-8537 / Juliet (021) 556-0693
• Kenridge – Wilna 083 539 6557 / Marna 072 453 2471
• Southern suburbs – Natashia (021) 531- 0891 / Katherine (021) 761-6219
• Paarl – Wilma (021) 201-2641 / Florence (021) 863-0448
• Parow – Dilshaad (021) 930-2475/082 927 2161 / Rahmat 082 826 4600
• Malmesbury – Selma 083 265 5458 / Bianca (022) 487-2824
• Other – Sophia (021) 393-1634 / Olga 082 062 0206 / Elizabeth (021) 782-6999

Eastern Cape

• Port Elizabeth – Nan (041) 583-1577 / Naomi 072 130 9879
• St Francis – Veronica 074 897 8091
• East London – Rensche 078 277 7385 / Michelle (043) 748-2763/071 386 8502
• Knysna – Vicky (044) 384-0426

Northern Cape

• Esme (027) 692-3041/079 161 6319

North West

• Potchefstroom – Frieda 074 740 2150

Botswana

• Gaborone – Wendy +267 390 2113

Breast Milk Banking

Donate your extra breast milk to help save the lives of other babies
• Milk Matters – (021) 659-5599 / 082 895 3004 / www.milkmatters.org
• The SA Breast Milk Reserve – Sasha – (011) 482-1920 / info@sabr.org.za
• Milky Hearts – Gail – 078 223 8622 / Promise – 082 998 0979 / www.milkyhearts.co.za / Facebook – MilkyHearts / Twitter – @milkyheartssa

Breast Pumps

• Breast Pump Hire – Medela Symphony pumps

Gauteng

• Bryanston – Judy Kirkwood – 082 562 1986
• Kya Sands – Karen van der Merwe – 082 335 7731
• Saxonwold – Jane Pitt – 082 494 7027
• Strydompark – Breast Pumps and Beyond – 083 300 4302
• Waterkloof Park – Santie Schwiebus – 082 408 5696
• Wingate Park – Anchen Verster – 072 578 9279

Western Cape

• Durbanville – Ruth van Stormbroek – 084 338 3342
• Paarl – Arina Grobler – 082 773 9681

KwaZulu Natal

• Waterfall – Carol Thomas – 071 689 0949

Eastern Cape

• East London – Desiree Schreiber – 082 823 0908
• Port Elizabeth – Leah Hughes – 076 359 8275

Other areas

• Can be supplied by courier direct to the Mom by Breast Pumps and Beyond – 083 300 4302

Breast Pump Hire – Medela Lactina pumps

Gauteng

• Boksburg – Christine Swanepoel – 082 487 4533
• Bryanston – Judy Kirkwood – 082 562 1986
• Greenside – Brenda Pierce – 083 664 8801
• Lynnwood Manor – Heather Pieterse – 082 829 5309
• Meyerton – Vanessa Smith – 084 628 0818
• Monument Park – Katinka Fourie – 082 376 0625
• Moreleta Park – Santie Schwiebus – 082 408 5696
• Sandton – Janine Nash – 082 959 9119
• Saxonwold – Jane Pitt – 082 494 7027
• Silver Lakes – Magriet van Abo – 083 556 4763
• Springs – Hettie Grove – 083 492 5861
• Strydompark – Breast pumps & Beyond – 083 300 4302
• Vanderbijlpark – Marietjie Roos – 082 255 7818
• Winchester Hills – Jane Maclaren – 083 260 0324
• Wingate Park – Anchen Verster – 072 578 9279

Western Cape

• Newlands – Louise Goosen – 082 924 9593

KwaZulu Natal

• Margate – Glynese Berriman – 082 556 2564
• Pietermaritzburg – Yulanda Ridge – 082 725 5043
• Waterfall – Carol Thomas – 083 794 4030
• Westville – Barbara Le Grange – 083 785 5248

Free State – Bloemfontein

• Fichardpark – Liza Vorster – 072 249 4581
• Other areas can be supplied by courier direct to the Mom by Breast Pumps and Beyond – 083 300 4302

Cerebral Palsy

• (021) 685-4150 – info@wccpa.org.za / www.wccpa.org.za / (031) 700-3956 / (033) 342-2913 / (041) 583-2130
Forest Farm Centre – (011) 789-3008 – residential care for adults with cerebral palsy

Charge Syndrome

Mr & Mrs Ferreira – 082 785 5400 / theoferreira@medihelp.co.za

Childbirth & Parenting Education

Childbirth and parenting education – KZN monthly talks – https://www.facebook.com/groups/540658229410228

Childsafe

Child Accident Prevention Foundation – (021) 685-5208 / www.childsafe.org.za

Child Developmental Assessment

Johannesburg Parent and Child Counselling Centre – (011) 484-1734 – individual family therapies and play therapy. Offices – Berea, Rosebank, Soweto, Hartebeespoort Dam
Counselling for parents, children, youth, families, couples, individuals and community groups. Play therapy for individual children and groups. Courses and workshops on all child and youth care and development issues for parents. Talks and lectures on any issues related to children, youth, development, families and communities

Multidisciplinary Therapy and Parent Support

Child and Family Unit – (011) 481-5103 / (011) 481-5155 fax – for children with emotional, psychological and psychiatric problems
• (011) 481-5207 – Neuro developmental clinic for children with neurological and developmental problems
Teddy Bear Clinic – (011) 484-4554 Parktown / (011) 660-3077 Krugersdorp / (011) 980-8160 Soweto – for abused children
Child & Family Welfare Society – (033) 342-8971
Childrens Assessment & Therapy Centre – (031) 208-5117
Khanya Family Centre – (011) 905-0915 – counselling for children, teenagers, adults, parents and groups. Psycho educational assessment for children and adolescents. Training on issues related to child development eg child abuse and discipline
Meyrick Bennett Child Guidance Centre – (031) 201-4126
Red Cross Children’s Hospital Developmental Clinic – (021) 658-5535

Child Minders Training

• Professional Child Care College

Training domestic workers in childcare
Beverly Wilson – (011) 482-3378 / 082 900 9137 / childcare@global.co.za / www.childcarecollege.co.za

Child Welfare

ACVV – Afrikaanse Christelike Vrouevereniging – (021) 461-7437 / 461-7447 – designated child protection organisation / headoffice@acvv.org.za
Child Welfare SA Head Office – (011) 452-4110
Child Welfare SA – (013) 752-8209 / (015) 291-1960 / (021) 945-3111 / (051) 430-7507

Cleft Information

Cleft Friends a project of the Smile Foundation – Closing the gap for cleft parents! –
082 393 1206 / 0861 A SMILE (0861 276 453) / info@cleftfriends.co.za / www.cleftfriends.co.za / www.facebook.com/CleftFriends
Support workshops are available in Gauteng, Limpopo, Western Cape, Eastern Cape and Free State
Cleft Friends helps parents and children affected by cleft lips and palates by providing support as soon as possible after birth through a parent support group network of moms and dads of cleft children who have the necessary training and hands-on experience. These amazing parents have walked the same road and want to share their stories of hope with others. It is the initial contact with another parent that makes all the difference. It sends a message of hope and relief in a traumatic situation. Our vision is to create awareness and educate communities about cleft lips and palates.

Support for Cleft Lip and Palates

Roslyn Lenton – (021) 404-6458/9 – speech therapist at cleft lip and palate unit

Counselling

The Parent Centre – (021) 762-0116
Pauline Sevitz – social worker and counsellor in private practice – adjustment to new parenthood and its effects on the couple’s relationship, individual therapy and couple counselling, stillbirths and miscarriages, illness and bereavement, postnatal depression, marital & relationship therapy and family counselling – (021) 794-6628 / 082 570 7165

Cri-du-Chat

Cri-du-Chat Syndrome Support Group – (011) 795-1647

Crisis Counselling

Lifeline – www.lifeline.org.za
Life Lines Southern Africa National Crisis number – 0861 322 322
Life Lines Southern Africa National Office number – (011) 715-2000
Provides a 24 hour telephone counselling service and face-to-face ¬personal counselling by appointment.

Gauteng

• Alexandra – (011) 443-3555
• Ekurhuleni – (011) 421-0384
• Johannesburg – (011) 728-1347
• Pretoria – (012) 804-1853 / crisis (012) 804-3619
• Soweto – (011) 988-0156
• Vaal – (016) 428-1540
• West Rand – (011) 665-2281 / crisis 0861 322 322

Western Cape

• Cape Town – (021) 461-1113
• Garden Route – (044) 343-2769 / 081 430 2264

KwaZulu Natal

• Durban – (031) 303-1344 /
• Pietermaritzburg – (033) 342-4447
• Zululand – (035) 789-2472

Free State

• Welkom – (057) 357-2746 / crisis (057) 352-2225

North West

• Klerksdorp – (018) 462-7838 / crisis (018) 462-1234
• Mafikeng – (018) 381-0976 / crisis (018) 381-4263
• Rustenburg – (014) 594-1455 / (014) 592-3158

Mpumalanga

• Nelspruit – (013) 755-3606

Crisis Pregnancy Centre – (012) 342-3452 fax – Hella Chaten. Emergency number – 084 740 5418 / amato@mweb.co.za / www.amato.co.za / 787 Arcadia Street, Arcadia
Crisis Pregnancy Centre – Born 2 Care – Heidelberg – 082 725 7777 – crisis line / hendab@lantic.net – Information is given on the development of the baby in the womb, the preciousness of life, abortion and the after-effects, single parenting and adoption through counselling. We aim to give each lady and her family our love and support, plus full information about the decision she has to make for herself and her baby
Life Link Pregnancy Crisis Centre – Sharon (011) 394-8560 am / 083 562 6106 – Adoptions, single parenting, unplanned pregnancies, home for unmarried mothers – 19 Maxwell Road, Kempton Park
Healthy Mom & Baby Clinic – Crisis pregnancy counselling – 082 609 8462 – Jeffreys Bay

Cystic Fibrosis Association

Information, advice and support to parents and families of cystic ¬fibrosis sufferers. www.sacfa.org.za
Alan Dunn – (011) 083-7234 / 083 285 5853 / alanfdunn@gmail.com
Derek Broere – 082 339 5601 / db@bitbuilders.co.za
Alwine Pretorius – (021) 933-2289 / 072 130 9420 / a.basenji@gmail.com
Tessa Kershaw – (021) 558-9502 / 082 300 4602
Debbie Long – (031) 768-1687 / 083 643 3328
Dr Paul Gebers – (041) 363-3900

Deafness

Deaf Federation of SA

National Office – (011) 482-1610
Provincial Councils – (011) 333-1945 / (013) 656-1996 / (015) 291-5248 / (021) 683-4665 / (043) 761-4636 / (051) 447-4705 / (053) 631-1086
Linksfield Audiology Institute – (011) 485-2325
The Childrens Communication Centre – (011) 484-3408
Wits University Speech Pathology & Audiology Department – (011) 717-4567
School for the Deaf, Blind & Physical Disabilities – (012) 793-1204/5
National Institute for the Deaf – (023) 342-5555
KwaZulu Natal Deaf Association – (031) 201-2261
KZN Blind & Deaf Society – (031) 309-4991
KZN Society for the Blind – (031) 202-7277

Death

See Bereavement

Depression

See Baby Blues
See Crisis Counselling
See Mom and Baby Support
See Postnatal Depression
Depression and Anxiety Group Counselling – Toll free – 0800 567 567 / www.sadag.org / SMS 31393

Diabetes Association

Diabetes SA Branches – 0861 222 717 / (021) 425-4440 Margo Mccumisky / (033) 346-0934 Felicity Giles / (041) 367-2810 Martin Prinsloo / East London – 083 659 8634 Dinish Vallabh / Kimberley – (053) 802-2233 Denel Schafer
Centre for Diabetes and Endocrinology – (011) 712-6000
• Free advisory service for diabetics, families and friends
Novo Nordisk – 0800 116 941 www.diabetessa.co.za

Diaphragmatic Hernia

CHERUBS – Association of congenital diaphragmatic hernia research, advocacy and support. CHERUBS was created to help families of children born with congenital diaphragmatic hernia and to research possible causes and better treatment for it. www.CHERUBS-CDH.ORG
Karen Howard – (031) 267-5175w / 082 310 1449 / karen.howard@sweidan.co.za

Disabled

Disabled Peoples of SA – (031) 701-2951 / fax (031) 701-6053
Association for the Learning Disabled – (031) 466-4477
Western Cape Network on Disability – Vivienne van der Merwe – (021) 531-1973 / wcdisability@gmail.com

Domestic Workers Child Care Course

Professional Child Care Colllege – Melville
Beverly Wilson – (011) 482-3378 / 082 900 9137 / childcare@global.co.za
Training domestic workers in child development and stimulation, importance of play and prevention of accidents

Doula

A birth companion to support you during labour and birth
www.wombs.org.za

Down Syndrome

Down Syndrome SA – 0861 369 672 / fax (011) 252-5323 / www.downsyndrome.org.za
Down Syndrome Association
Office – 0861 369 672 / dssaoffice@icon.co.za
(011) 484-6116 / (011) 615-4180 / (012) 664-8928 / Tzaneen – 078 246 0888 / (021) 689-1519 / (021) 919-8533 / (031) 464-2055 / (043) 722-4918 / Bloem – (051) 405-3292
Down Syndrome Support – 082 424 6339 / (012) 664-8871

Dystonia

Dystonia Association of SA – 084 707 1153 Gisela / 084 650 6500 Karen Willemse / www.parkinsonssa.org / karen@parkinsonssa.org

Epilepsy

Epilepsy SA – To reach your local office call 0860 374 537
National Office – (021) 903-1479 / www.epilepsy.org.za / nationaldirector.no@epilepsy.org.za
Regional Offices – (011) 811-1590 / (011) 818-2139 / (013) 254-0161 / (021) 703-9420 / (044) 382-2155 / (056) 811-5959
Epilepsy Foundation – (031) 309-1370 – provides counselling Gloria Andipatin

FAMSA– Families South Africa

To promote healthy family life
www.famsa.org.za / national@famsa.org.za / (011) 975-7106 / 086 641 6882 fax
(011) 892-4272 / (011) 766-3283 / (011) 788-4784/5 / (011) 984-0266 / (012) 460-0733 / (014) 592-9747 / (015) 307-4833 / (015) 962-3728 / (016) 933-8128 / (017) 631-1593 / (018) 293-2272 / (021) 447-7951 / (021) 872-2700 / (023) 347-5231 / (031) 202-8987 / (033) 342-4945 / (041) 585-9393 / (043) 743-8277 / (043) 683-1418 / (044) 272-7020 / (044) 382-5129 / (044) 874-5811 / (046) 622-2580 / (051) 525-2395 / (053) 872-2644 / (054) 332-3955 / (057) 352-5191

Family Life Centre

To promote and maintain constructive relationships within the ¬family
(011) 788-4784/5 – 1 Cardigan Rd, Parkwood / famlife@iafrica.com / www.familylife.co.za

Fire – 999

First Aid Services

St John Priory – (011) 646-5520 – Head Office
• St John offers First Aid Courses that will equip you with the skills necessary to deal with an emergency. Courses are suitable for new mothers, child minders and au-pairs
Branches – (011) 403-4227 / (011) 673-1041 / (021) 461-8420 / (021) 782-3306 / (021) 851-7394 / (031) 305-6588 / (041) 364-2701 / (041) 360-7979 / (043) 722-9840 / (046) 636-1650 / (051) 444-6276 / (053) 838-2519
Red Cross – www.redcross.org.za
Branches – (015) 491-3916 / (018) 381-6778 / (021) 797-5360 / (031) 563-2914 / (041) 585-6745
Red Cross Childrens Hospital – (021) 658-5111
SA Noodhulpliga / SA First Aid League – (012) 644-0918 head office / fax (012) 644-0841 / (021) 948-6294
Flying Squad– 10111

Foetal Alcohol Syndrome

SANCA national office – (011) 892-3829
(011) 673-0400 / (011) 854- 5988 / (011) 892-0875 / (011) 917-5015 / (011) 984-4017 / (012) 542-1121 / (013) 656-2370 / (013) 755-2710 / (015) 295-3700 / (016) 349-2892 / (016) 933-2055 / (016) 976-2051 / (018) 462-4568 / (031) 202-2274 / (033) 345-4537/ (034) 312-3641 / (035) 772-3290 / (035) 831-0677 / (044) 884-0674 / (051) 447-4111 / (057) 352-5444

Fragile X Syndrome

Fragile X Syndrome Support Network
Luisa Potenza – lula@icon.co.za / 12 Hawthorne Street, Kensington 2094
Gwen – 082 492 5702
• www.fragilex.org.uk / www.fragilex.org

Gaucher Society

• www.gaucherssa.co.za

Genetic Counselling

Genetics Clinic Wits – (011) 489-9223/4
Genetics Clinic Tygerberg Hospital – (021) 938-4760
Genetics Clinic Nkosi Albert Luthuli Central Hospital – (031) 240-2341
Noelene Kinsley – Gauteng – 082 547 5720 / (010) 595-1005
Caryn Todd – Durban – 079 873 8240 www.geneticalliance.org.za

Gluten Intolerance / Coeliac Support Group

Lucille Cholerton – Nutrition counsellor, specialist in gluten sensitivity / coeliac disease – lucoll@mweb.co.za / www.allergysa.org

Haemophilia Association

Selo Tuswa – 082 890 2707
Judy Butler – (021) 785-7140 / 083 711 7287
Wayne Fowles – 082 321 0931 – KZN
• www.haemophilia.org.za

Headway

• A non-profit organisation offering rehabilitation and support for brain injury survivors and their families. Physiotherapy, Speech, Occupational therapy, Psychology, Support groups
• (011) 442-5733 / headway@iafrica.com / www.headway-gauteng.co.za
• (031) 266-2709 /

HIV / AIDS

AIDS Helpline – 0800 012 322 – AIDS information – open 24 hours
Multisectoral Aids and Management Unit – (012) 358-8743 reception/ (011) 984-4050 / (012) 358-5562 / (012) 358-8638 / (012) 358-8746 / (012) 358-8771 / (057) 353-3029

Dr L Mbobo

HIV care – VCT, wellness, treatment for opportunistic infections provision of antiretroviral medication
• Training in HIV and AIDS to all healthcare workers especially doctors and nurses
• 073 820 7018 / mbobolarry@gmail.com

Homes for Single, Pregnant Women

Life Link Pregnancy Crisis Centre – Sharon – 083 562 6106 / (011) 394-8560am – 19 Maxwell Road, Kempton Park
Princess Alice Adoption Home – (011) 646-5641 – JHB Welfare referral

Inherited Disorders Association

see G Genetic
SAIDA – SA Inherited Disorders Association
(011) 489-9213 / www.saida.org.za
SAIDA is a not for profit organization that acts as an umbrella organization for the inherited disorders support groups of South Africa. SAIDA aims to provide support for and promote effective communication between the supports groups. SAIDA is also actively involved in promoting the understanding of and education about the many inherited disorders that occur in South Africa

Intellectual Disability

SA Federation for Mental Health – (011) 781-1852 / www.safmh.org / info@safmh.org
(011) 614-9890 / (012) 374-3002 / (015) 307-4732 / (016) 931-2910 / (017) 631-2505 / (017) 826-3199 / (018) 297-5270 / (021) 447-9040 / (031) 207-2717 / (033) 392-7230 / (035) 787-0146 / (041) 365-0502 / (041) 922-8025 / (043) 722-1811 / (053) 841-0537 / (057) 352-1046

Jaundice – phototherapy hire – see Bilibed hire

La Leche League (see breastfeeding)
To help mothers breastfeed through education, information and¬ mother-to-mother support.

Learning Disorders

Specialised Education Support – (021) 467-2027/8 – Learners with special educational needs

Marfan Syndrome

www.marfan.org.za

Medic Alert Foundation

(021) 425-7328 / fax 086 273 0168 / info@medicalert.co.za

Mom and Baby Support

The Parent Centre – (021) 762-0116 / www.theparentcentre.org.za / zaiboe@theparentscentre.org.za

Moebius Syndrome Foundation SA

www.moebiussyndrome.co.za

Multiple Births

SAMBA (SA Multiple Birth Association) – www.samultiplebirth.co.za
East Rand and Vaal – Marion 072 049 7891
Facebook : South African Multiple Birth Association
• We hold Expectant Parents seminars twice year and all of our members receive a quarterly magazine
TATS – Twins and Triplets Society Cape Town – a society of families who have been there, done that and have the oversized T-shirts. We will be able to help you allay your fears, calm the nerves, give very helpful advice and be a shoulder to cry on when you feel all is lost. www.tats-wc.co.za
Twin Talk – Twin Talk is an online community for parents, especially those with multiples. Share your experience, trials and tribulations with those who are in the same boat as you and make some friends along the way. Parenting is not a job, it is a joy, you just need the right tools – www.twintalk.co.za / www.facebook.com/twintalkcoza /: https://twitter.com/twintalkcoza / http://pinterest.com/twintalkcoza/ / http://www.youtube.com/user/twintalkcoza

Muscular Dystrophy

National office – (011) 472-9703 – Sue Bester / national@mdsa.org.za / www.mdsa.org.za / corner 414 Ontdekkers Road & Botes Street, Florida Park
Branches

o Gauteng – Peter Joubert – (011) 472-9824
o Western Cape – Win van der Berg – (021) 592-7306
o KwaZulu Natal – (031) 332-0211

Nanny Training

Sugar and Spice Nanny Training – Kim – 082 743 3076 / kim@nannytraining.co.za

Neurofibromatosis Association

Mannie – manniemanim@iafrica.com / www.saida.org.za

New Moms Support Group

Clevame – support for new moms – Blackheath – 079 899 2456
JJ Wellness Centre – postnatal support – 083 260 0324
Little Life Group – Tuesday am (031) 737-3035 – Lindsey Watkeys
Heather – 47A 7th Ave, Parktown North – Weekly support group for new moms. Tuesdays 10:30-12:00 – (010) 900-4676

Noonan Syndrome Support Group

Lucy Cinnamond – 082 456 0233 / lucy@vanflymen.co.za / Box 16720, Dowerglen 1612

Nursing Services

Nursing Services SA – 0860 654 321 – day and night
Aupairs Exclusive – Marion Smith – night nurses and night nannies – 072 049 7891 / www.aupairsexclusive.co.za

Organ Donor

Organ Donor Foundation – 0 800 22 66 11 / www.odf.org.za

Overeaters

Overeaters Anonymous – (011) 640-2901 / www.oa.org

Parent and Child Counselling Centre (Johannesburg)
Offers counselling services to parents and children, school assessment, short and long term therapy, talks and training, HIV counselling
(011) 484-1734/5/6 / (011) 484-1735 fax

PACSEN – Parents Association for Children with Special Education Needs – (012) 333-0149

Perinatal Loss

Perinatal Loss Support Group – support group for mothers that have experienced loss through miscarriage, stillbirth and infancy death – Pretoria East – Samala Kriedemann – 083 389 6929 / samala@mama-nurture.co.za / www.mama-nurture.co.za
Perinatal Loss Support Group – Bryanston – Sally Baker – Meet on the 2nd Thursday of every month – 082 584 0666
Perinatal Loss Group – Hilton – Trish – 081 528 6577

Physically Disabled

• 4 Lancaster Street, Westdene, Johannesburg / nationaloffice@NCPPDSA.org.za / www.NCPPDSA.co.za
Western Cape Association for Persons with Disabilities – (021) 555-2881 / (021) 555-2888 fax / director@wcapd.org.za / www.wcapd.org.za

Poison Information Centre

Poison Information Centre – 0861 355 777 – Manned 24 hours a day by qualified personnel. For the public ¬seeking emergency advice on the treatment of poisoning
Netcare Ambulance Services – 082 911
MRI Criticare Emergency Service – 0800 111 990

Porphyria Information Service

(021) 406-6332 / www.porphyria.uct.ac.za

Postnatal Depression

• Postnatal Depression Support Association info@pndsa.org.za / www.pndsa.org.za
Postnatal Depression National Helpline – 082 882 0072 – sms help and your name and someone will call back
Barbara Le Grange – (031) 265-9790
Alison Sampson – (031) 208-5500
Postnatal Depression Group – Hilton – Trish – 081 528 6577

Postnatal Support Group

“Moms’ Connect” Group – for Moms with babies and toddlers
• You are invited to share the experience of motherhood with good coffee and new friends in a supportive environment. Varied program with plenty of chill and chat time. Thursdays during school term 10:00 – 12:00 at Christ Church, 8 Richmond Rd, Kenilworth, Cape Town. Contact Jill Mathew – 072 329 0281 / jill@mathew.za.net
Postnatal support – Bedfordview – Jane Maclaren – Wednesdays 10am – 083 260 0324
Mother Support Group at Netcare Blaauwberg Hospital – Friday morning 10:30 – 12:00 – 021 554 9388
Mother’s Group Little Life Crompton Hospital – Tuesdays 10:30
Teatime Postnatal Group – Pietermaritzburg – 084 722 3107
Brand New Mama Tea – weekly support group @ Kloof Country Club – 0763290217

Prader-Willi

Prader-Willi Syndrome Association of SA – www.praderwilli.org.za
Rika du Plooy – (012) 344-0241 / chairperson@praderwilli.org.za
Medical advisor – Dr Engela Honey – medic@praderwilli.org.za / (012) 319-2269

Pregnancy Crisis Service

Telephone and personal counselling for people experiencing unintended pregnancies
Amato Pregnancy Crisis Centre – (012) 342-3452 / after-hours 084 740 5418
Life Link Pregnancy Crisis Centre – Sharon – (011) 394-8560am / 083 562 6106 – Adoptions, single parenting, unplanned pregnancies, home for unmarried mothers, HIV testing and counselling – 19 Maxwell Road, Kempton Park
Counselling Pregnancy Centre – (012) 342-3452 – Marlene Jansen. Emergency number – 084 740 5418 / infoamato@mweb.co.za / www.amato.co.za / 787 Arcadia Street, Arcadia, Pretoria
Born 2 Care – Heidelberg – 082 725 7777 – crisis line / hendab@lantic.net – Information is given on the development of the baby in the womb, the preciousness of life, abortion and the after-effects, single parenting and adoption through counselling. We aim to give each lady and her family our love and support, plus full information about the decision she has to make for herself and her baby
Choices Crisis Pregnancy Counselling Centre – (021) 852-6454 / info@choices.org.za / 1 Schapenberg Road, Somerset West
Pregnant Teen Learning Centre – hospital school – (012) 329-1560

Premature Baby

Hold your Prem – a workbook on skin-to-skin contact for premature babies www.kangaroomothercare.com

Rare Disease Society

Kelly du Plessis – 010 594 3844 / www.rarediseases.co.za

Reflux Support Group

Reflux Support Group – Michelle – (041) 395-9656

Renal Care

• (021) 480-6276
National Renal Care – Acute dialysis 24 hour – 082 574 1629

Restricted Growth Counselling

Elaine Warwick – 082 870 9077 / erwdynamite@gmail.com

Retina South Africa

• 0860 59 59 59 / national@retinasa.org.za / www.retinasa.org.za

Rett Syndrome

Rett syndrome South Africa – www.rettsyndromesouthafrica.com

Sea Rescue

Emergency number – (031) 361-8567

Single Mom’s Support Group

Monica Spiro – (021) 794-1577 –

Sleep Apnoea Help and Support Group

To reduce disability and death from the medical condition of sleep apnoea through understanding, sharing, motivation and the spreading of knowledge
Annette van Rensburg – (012) 997-7098 / 082 573 4015 / sleepapnea@telkomsa.net

Speech and Hearing

Department of Health and Rehabilitation Sciences – (021) 406-6401

Spina Bifida & Hydrocephalus

Louise Muller – 082 926 5251 / (011) 475-1460

Stop Gender Helpline – 0800 150 150

Support Group for Parents of Special Needs Children and Pensioners

Rookaya Vawda – rookayavawda@mweb.co.za

Support Group – Postnatal

Rustenburg – Babies and Boobies Club – 072 124 7355 / www.boobiesandbabiesclub.co.za

UIF

Money for Mom’s – UIF maternity claims services – (011) 465-9876 / Joan – 083 518 8921 / Eric – 083 284 0868 / www.moneyformoms.co.za
My Claim Mate – Sizile Makola – 083 786 2489 / www.myclaimmate.co.za – your professional nation-wide partner for claiming from the UIF, there to make the claiming process quick and easy.

Vaccines

Vaccine Helpline – 0860 160 160 – Monday to Friday 9am to 5pm

Velo-Cardio-Facial Support Group

Derek and Val Landau – (011) 432-1482 / 083 470 1998

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